Families of Ocean ward
The ‘Families of Ocean ward’ charity is run by parents of children who have been treated on Ocean Ward. The charity can provide emotional support to families of children referred to Southampton from antenatal diagnosis through to adulthood.
- an active online community on Facebook where parents can support one another through shared experiences
- financial assistance for some families during long ward stays
- information about other charities and useful services.
The BHF website provides useful information about heart conditions, diagnosis and treatment. It also offers support for families and children and offers advice about preparing your child for a hospital stay. See the website for details of the helpline and publications.
LHM is a charity offering support and information for children and their families when a child only has half a heart (children with a single ventricle circulation). The website features parents’ and children’s experiences and includes a helpline, information and publications about feeding issues, travel advice, exercise and school information.
This registered charity aims to support and work with teenagers and young adults born with a heart condition (congenital), providing practical and emotional support, and enabling them to take control of their lives and manage their own condition. See the website for information, support, advice and details of their helpline.