Support for patients

Patients and families affected by congenital heart disease can face a number of challenges. The network has a variety of facilities, staff and charitable support to help.

Support for patients

Patients and families affected by congenital heart disease can face a number of challenges. The network has a variety of facilities, staff and charitable support to help.

Support groups and charities

Children’s and adult cardiac services in the South of England and across the UK are fortunate to be supported by a number of organisations and charities, including a charity dedicated to the children’s heart unit at Southampton Children’s Hospital known as Families of Ocean Ward. 

More information on support groups specifically for young patients approaching transition is available on the transition page. There are also many support groups linked to individual medical conditions. 

If you would like information on a particular support group, please contact your cardiac nurse specialist team.