Babies and children

When your child is diagnosed with a heart condition it is naturally an anxious time and you might be unsure what to expect. There will be support and information available throughout your care pathway.

Find out more about our children’s service below.

About our children's services

Children’s congenital heart disease services across the Thames Valley and Wessex region care for a population of three million and are provided by University Hospital Southampton NHS Foundation Trust, which runs Southampton General, Southampton Children’s and the Princess Anne hospitals, in partnership with Oxford University Hospitals NHS Foundation Trust and local hospitals throughout the region.

Children who require heart transplantation or advanced therapies for pulmonary hypertension (a type of high blood pressure which affects the arteries that supply the lungs) are referred to designated National Specialist Commissioning Advisory Group centres.

Referral pathway for surgery or catheter intervention

If your child has been referred to Southampton hospital for surgery or catheter intervention and you would like more information about the surgical or catheter pathway. 

Preparing for and talking to your child about their stay in hospital

Support and information to prepare your child for an admission to hospital is available

Useful information

If you would like more information on any of the areas listed below, click on the images below to take you to dedicated information pages. 

Endocarditis & dental health

Physical exercise

Advice in schools

Psychology & support

Who can I contact if I am worried about my child's heart condition?

If you have concerns about your child’s heart condition or treatment, please contact you child’s cardiac nurse specialist team

The nurse specialists can offer advice and information about your child’s heart condition, signpost you to further sources of support and information and speak to your child’s consultant on your behalf.

If your child is unwell you can also seek advice from NHS 111.

Information about common childhood illness and injuries, COVID-19, RSV (Bronchiolitis), and support for children’s mental health can be found on the Wessex Healthier Together website. This provides information about signs/symptoms to monitor for and the most appropriate place to seek advice and support for these childhood illness and conditions.

If you feel it is an emergency always dial 999.

Oxford Patients

Southampton Patients

Oxford University Hospitals NHS Foundation Trust

 Tel: 01865 234 985  or call 0300 304 7777 Bleep 4170 

Messages are checked throughout the day and a member of the team will call you back. Alternatively, you can email the team:

Monday to Friday 8am until 5pm

For urgent clinical advice during normal working hours and at weekends and bank holidays:

  • Contact Ocean Ward on 02381 206470
  • In an emergency, always call 999

Nurse Advice Answerphone Line (for non-urgent enquiries):

  • Parent/Carer Advice answerphone service: 02381 204659 (Monday-Friday 9am-5pm). 
  • Please leave a message with your child’s details, a contact number and the reason you are calling. Messages are checked throughout the day and triaged. A member of the team will call you back the same day or next working day.

Enquiries for the cardiology secretaries and information about appointments/changing appointments: